Saturday, March 29, 2008

What is living with CFS like?

Imagine... struggling to get out of bed every morning.. feeling tired, dizzy
and dysfunctional after a good nights sleep.. imagine... walking a short
distance only to find that this excursion has totally exhausted you..
imagine.. having constant muscle and joint pain.. and feeling that someone
has stuffed cotton wool inside your head...and when you try to read.. the
words in a book.. just seem to swim off the page.. which then leaves you
feeling dizzy.. and sick..

Imagine... these symptoms lasting for years.. how would you cope?


The above is just touching on some of the symptoms of Chronic Fatigue
Syndrome.. and immune dysfunction syndrome (CFIDS), Myalgic
Encephalomyelitis (M.E.) or Post Viral Fatigue Syndrome (PVFS)
It is now estimated that there are up to 240,000 with (C.F.S.) in the UK. It
can affect men, women and children from low income and minority
communities... Mainly developing between early twenties.. and mid forty's.

The causes of (CFS).. are like that of the illness.. poorly understood.. it
often develops after a virus.. like flu or glandular fever.. and it has been
known to develop in the case that you have undertaken to have surgery done..
but... it can always develop for no obvious reason.. there are many trigger
factors.. but it is not always the case that you are in the position to
identify what triggered your condition.


With regards to the above information, regardless of what society has been
taught through the negativity that has been created via this so called
invisible illness...

Please give a thought for those that suffer...


What was that you say??? you can never imagine in a million years what we as
sufferers go through on a daily basis... but still you comment on how tired
we look???

Why???


Perhaps for a moment, unknowingly comment on what the eye can see... but
unfortunatly that has become our downfall....


We are REAL people suffering from a REAL illness... and if we were ONLY just
tired, we would sleep... and if (as society projects) we are lazy... why do
we struggle to gain or even try to maintain employment???

We as sufferers, have not only to deal with the negativity that society has
projected, but also the case factor that we have unfortunalty contracted "An
Invisible Illness"...


We as sufferers, are faced with a battle everyday to maintain that our hopes
and dreams will suffice...


Against our will, we have become victims of society...


Please take a moment of your time, to listen, learn and understand...

And we as sufferers, relentlesly pray for the day, that this illness is
recognised, and therefore, our "magic pill" will be available....

But until such a time that our fairytale becomes true.... we will be
subjected to that of a fable....

But to contradict the above, C.F.S./M.E. is not a fable, as we are REAL
people suffering from a REAL illness.... dreaming of a fairytale coming
true....


You may (or may not) know that there is an M.E./C.F.S. awareness day on May
12th, but due to the negativity of society, etc... I have now decided to
have an additional M.E./C.F.S. awareness day...

Perhaps now with 2 reminders a year... Society and the N.H.S. will realise
why we as sufferers NEED TO SPREAD MORE awareness of our debilitating
condition... with the hope that we will not be continually disregarded and
swept under the carpet, so to speak...

Please help this cause by forwarding this email to every contact in your
address book, sufferer or not, in the hope to raise more awareness other
than the so called negativity that society breeds...


Alone we are victims... together we are a team...


We will win this battle....

Do you know someone who suffers from M.E./C.F.S., or you want to know more
about this debilitating illness yourself, then find out at,
http://www.chronicfatiguesyndrome.me.uk


If you are a sufferer of this illness and need some support, or you are a
carer for someone with M.E./C.F.S., then come and join in the discussions
with fellow sufferers and carers on our support forum...
http://www.chronicfatiguesyndromeforum.me.uk



~Hugz~


Colin & Linda x
http://www.chronicfatiguesyndrome.me.uk

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