Monday, June 23, 2008

CDC acknowledges CFS and ME distinction

A surprising nugget of information surfaced when I recently searched for
Myalgic Encephalomyelits on the CDC's website. Evidently, even the
CDC acknowledges that ME is *not* CFS!

From the overview chapter of the CDC's CFS provider education course:
http://www.cdc.gov/cfs/cme/wb1032/chapter1/overview.html

"Various terms are incorrectly used interchangeably with CFS. CFS has
an internationally accepted case definition that is used in research
and clinical settings. The name chronic fatigue and immune
dysfunction syndrome (CFIDS) was introduced soon after CFS was
defined; there is no case definition for CFIDS, and the name implies
an understanding about the pathophysiology of CFS that is not fully
supported in the medical literature.

***The name myalgic encephalomyelitis (ME) was coined in the 1950s to
clarify well-documented outbreaks of disease; however, ME is
accompanied by neurologic and muscular signs and has a case
definition distinct from that of CFS." *** (emphasis and paragraph
break added)

* * *

After decades of CDC having abolished ME by executive fiat and having it subsumed into their ever-changing definition of CFS, such that it was almost impossible to get an ME diagnosis in the US because CDC said ME didn't exist, they are now acknowledging the neurologic nature of the disease as separate from their new watered-down version of CFS (a definition that apparently does not include those of us who have the disease discovered in Incline Village). 

Maybe now we can get respect and research funding!

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