Phoenix CFS has been collecting patient stories for their website. Here's a link to one, and from there you can navigate the site to the others:
Linda very poignantly talks of the ups and downs of a 20 year
journey with severe ME/CFS that began in college. Fiercely
committed to advocacy and improving the lives of chronic fatigue
syndrome (ME/CFS) patients she also provides a resources list at the
end of her story.
Linda's Story: http://phoenix-cfs.org/StoryMacdonald's.htm
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