CFS and Self References

References

Anderson, J. M. (1991). Immigrant women speak of chronic illness: The social construction of the devalued self. Journal of Advanced Nursing, 16(6), 710-717.

Asbring, P. (2001). Chronic illness - A disruption in life: Identity transformation among women with chronic fatigue syndrome and fibromyalgia. Journal of Advanced Nursing, 34(3), 312-319.

Asbring, P., & Narvanen, A.-L. (2003). Ideal versus reality: Physicians perspectives on patients with chronic fatigue syndrome (CFS) and fibromyalgia. Social Science & Medicine, 57(4), 711-720.

Buchwald, D., Pearlman, T., Umali, J., Schmaling, K., & Katon, W. (1996). Functional status in patients with chronic fatigue syndrome, other fatiguing illnesses, and healthy individuals. American Journal of Medicine, 101(4), 364-370.

Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167-182.

Cairns, R., & Hotopf, M. (2005). A systematic review describing the prognosis of chronic fatigue syndrome. Occupational Medicine, 55(1), 20-31.

Charmaz, K. (1983). Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168-195.

Clarke, J. N., & James, S. (2003). The radicalized self: The impact on the self of the contested nature of the diagnosis of chronic fatigue syndrome. Social Science & Medicine, 57(8), 1387-1395.

De Ridder, D. T. D., Schreurs, K. M. G., & Bensing, J. M. (1998). Adaptive tasks, coping and quality of life of chronically ill patients. The cases of parkinson's disease and chronic fatigue syndrome. Journal of Health Psychology, 3(1), 87-101.

Edwards, C. R., Thompson, A. R., & Blair, A. (2007). An 'overwhelming illness'. Women's experiences of learning to live with chronic fatigue syndrome/myalgic encephalomyelitis. Journal of Health Psychology, 12(2), 203=214.

Fischler, B., Dendale, P., Michiels, V., Cluydts, R., Kaufman, L., & de Meirleir, K. (1997). Physical fatigability and exercise capacity in chronic fatigue syndrome: Association with disability, somatization and psychopathology. Journal of Psychosomatic Research, 42(4), 369-378.

Frank, A. W. (1998). Just listening: Narrative and deep illness. Families, Systems & Health, 16(3), 197-212.

Fukuda, K., Straus, S.E., Hickie, I., Sharpe, M.C., Dobbins, J.G., Komaroff, A., & International Chronic Fatigue Syndrome Study Group. (1994). The chronic fatigue syndrome: A comprehensive approach to its definition and study. Annals of Internal Medicine, 121 (12), 953-959.

Garro, L. C. (1994). Narrative representations of chronic illness experience: Cultural models of illness, mind, and body in stories concerning the temporomandibular joint (TMJ). Social Science & Medicine, 38(6), 775-788.

Gibson, P. R., Placek, E., Lane, J., Brohimer, S. O., & Lovelace, A. C. E. (2005). Disability-induced identity changes in persons with multiple chemical sensitivity. Qualitative Health Research, 15(4), 502-524. Glenton, C. (2003). Chronic back pain sufferers - Striving for the sick role. Social Science & Medicine, 57(11), 2243-2252.

Gray, M. L., & Fossey, E. M. (2003). Illness experience and occupations of people with chronic fatigue syndrome. Australian Occupational Therapy Journal, 50(3), 127-136.

Guba, E. G., & Lincoln, Y. S. (1994). Competing paradigms in qualitative research. In N. K. Denzin, & Y. S. Lincoln (Eds.), Handbook of qualitative research (pp. 105 ­117). California: Sage.

Hyden, L. C., & Sachs, L. (1998). Suffering, hope and diagnosis: On the negotiation of chronic fatigue syndrome. Health, 2, 175-193.

Jordan, J. E., & Osborne, R. H. (2007). Chronic disease self-management education programs: Challenges ahead. MJA, 186(2), 84-87.

Lindsey, E. (1996). Health within illness: Experiences of chronically ill/disabled people. Journal of Advanced Nursing, 24(3), 465-472. Paterson, B. L. (2001). The shifting perspectives model of chronic illness. Journal of Nursing Scholarship, 33(1), 21-26.

Rakib, A., White, P. D., Pinching, A. J., Hedge, B., Newbery, N., Fakhoury, W. K., et al. (2005). Subjective quality of life in patients with chronic fatigue syndrome. Quality of Life Research, 14(1), 11-19.

Schoofs, N., Bambini, D., Ronning, P., Bielak, E., & Woehl, J. (2004). Death of a lifestyle: The effects of social support and healthcare support on the quality of life of persons with fibromyalgia and/or chronic fatigue syndrome. Orthopaedic Nursing, 23(6), 364-374.

Shepherd, C. (1997). Disagreements still exist over chronic fatigue syndrome. British Medical Journal, 314(7074), 146.

Steven, I. D., McGrath, B., Qureshi, F., Wong, C., Chern, I., & Pearn-Rowe, B. (2000). General practitioners' beliefs, attitudes and reported actions towards chronic fatigue syndrome. Australian Family Physician, 29(1), 80-85.

Strauss, A., & Corbin, J. (1998). Basics of qualitative research. Techniques and procedures for developing grounded theory (2nd ed.). California: Sage.

Swanson, J. M., & Chenitz, W. C. (1993). Regaining a valued self: The process of adaptation to living with genital herpes. Qualitative Health Research, 3(3), 270-297.

Thorne, S., & Paterson, B. (1998). Shifting images of chronic illness. Image. The Journal of Nursing Scholarship, 30(2), 173-178.

Van Damme, S., Crombez, G., Van Houdenhove, B., Mariman, A., & Michielsen, W. (2006). Well-being in patients with chronic fatigue syndrome: The role of acceptance. Journal of Psychosomatic Research, 61(5), 595-599. Vickers, M. H. (2000). The 'invisibly' chronically ill as unexamined organizational fringe-dwellers: Voices of ambiguity, confusion, and uncertainty. Research in the Sociology of Work, 9, 3-21.

Wessely, S. (1997). Chronic fatigue syndrome: A 20th century illness? Scandinavian Journal of Work, Environment and Health, 23(Suppl. 3), 17-34.

White, C., & Schweitzer, R. (2000). The role of personality in the development and perpetuation of chronic fatigue syndrome. Journal of Psychosomatic Research, 48(6), 515-524.

Whitehead, L. C. (2006). Quest, chaos and restitution: Living with chronic fatigue syndrome/myalgic encephalomyelitis. Social Science & Medicine, 62(9)