RENAME ME/CFS TO SISYPHUS DISEASE OR EZELIUS DISEASE
I hope my free thoughts in this subject presented below may help getting
some ideas of how to find a suitable name for ME/CFS. The main idea is to
avoid using any medical terms in the name, but instead use a surname for the
disease as for example in "Ménières disease". Let us be creative when
thinking about a new name!
I think ME/CFS should be renamed to a name that does not include anything
about the patho-physiology. That would be the logical thing to for a disease
that has a very complex patho-physiology. The patho-physiology is not known
for the moment and we need a name now, and not in 20 years or so when the
disease is understood in detail. What name could we expect anyhow when the
origin of the diseased is found? Maybe we end up with "high expression of
the CGDT-123 gene coupled with mutations on the DGEE-1 and DETA-5 genes".
That would not be suitable anyway.
The more generic name neuro-endocrine dysfunction, I think is too general to
be used for ME/CFS. I am convinced that in the future a lot of diseases will
be discovered to pertain to the neuro-endocrine system. We already have a
few. So I think neuro-endocrine dysfunction is not suitable for ME/CFS.
Instead, my suggestion is to rename ME/CFS to "Sisyphus disease". Sisyphus
was a king in Greek mythology that outwit/duped death. As punishment he had
to work in underworld to repeatedly for eternity roll up a rock uphill a
mountain, from where it fell down again. From there, a "Sisyphus work" is a
work that last for ever and never yields no result. This is exactly what it
is like to live with ME/CFS. The inability to finish things. You do a bit
but get tired and have to stop and then you have to start all over again.
You get nowhere and can not go an and pursue your life.
It might be that Sisyphus disease might not be "serious enough" because it
might people laugh when saying that "I have got Sisyphus disease" and think
that you are telling a yoke. If that is the case, then I think that it can
be named with any surname. For instance call it "Ezelius disease".
/Kasper Ezelius, Örebro, Sweden ( http://goto.glocalnet.net/me_cfs )
Background and more thoughts about the name change that I propose:
http://goto.glocalnet.net/me_cfs/dok/name.htm
More about Sisyphus: http://en.wikipedia.org/wiki/Sisyphos
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