Monday, September 13, 2004

Sept. 13, 2004

By way of introduction, I'm Karen, age 46.  I've been diagnosed with Chronic Fatigue Syndrome since 1988 and fibromyalgia since 2001 (though it probably existed since the early 90s).  Since 2000, I've been off work due to the symptoms; I'm still fighting for Disability benefits because one doctor filled my records with lies, in a clear attempt to make sure I never got a cent.  (For example, he ignored the diagnoses of two specialists and claimed I was "self-diagnosed".)

Had a sinus headache when I went to bed last night, and woke up with it still.  A long nap didn't help.  The other day at Target, I found some bath salts for colds, fragrant with eucalyptus, which seems to help a little. 

So far today, I have not felt up to doing any stitching; I don't have anything at the mindless stage, so I have to be alert enough to count properly.  The piece I've been doing lately has a lot of color changes in the section I'm now at.

Fortunately, I got some teriyaki take-out from the Kobayan Temple Fall Fair yesterday, so I had some good food that just needed to be heated. 

 

 

3 comments:

Anonymous said...

Karen,
Love the idea of your blog, I think it's a great way to vent what's going on in your life and to share with others who might feel they are all alone in having the same problems/symptoms.

Looking forward to reading this blog--another way for me to keep in touch with one of my good friends :o)

Take care!

Hugssssssss

~Vickie

Anonymous said...

Karen, good luck with your blog, from Alison, and all your friends at the metrotribnews listserv!

Anonymous said...

Well, I have known Karen since mid-2000 and I think she's the bravest, thoughest, sweetest, kindest, lovest person out and I am proud to be her friend and to be supporting her as she travels through life.

I hope that one day she can wake up well and better, but until then she is always in my thoughts.

I am a needlework designer, and I am working on a design called Clutter Fairy which is dedicated to Karen who came up with the idea for the design. As soon as it is ready, a large portion of the profit of the sale of that pattern will be going to Chronic Fatigue Syndrome research to find a cure for this debilitating disease.

I know PRECISELY where Karen is coming from because my own sister has been diagnosed with this disease when she was just 13 years old (she is going to be 22 on October 5). My sister is now studying to be an architect and just like Karen she is showing us all how brave she is.

Lots and lots and lots and lots of hugs,

Your bestest friend Nathalie

P.S. I am not sure if I can tell people my web address, but if I can, then Karen can add a comment telling you it. ;-))